 Batten Disease Family Association (BDFA)
 - Supportive, informative, networking organisation for the families, carers, and professionals giving care to children and adults with Batten Disease.- Batten Disease Support and Research Association - Australian Chapter
- Outlines the disease and the role of the association.
- Batten Disease Support and Research Association
- International support and research networking organisation for families of children and young adults with this inherited neurological degenerative disorder.
- Batten Support and Research Trust (BSRT)
- Building public awareness of the disease.
- JNCL Research Fund
- Committed to the discovery of treatments for the degenerative brain disease known as Batten Disease.
- Natalie Fund, The
- In search of a treatment and cure for Batten Disease.
- Nathan's Battle
- Foundation established to aid in the development of therapies for Late Infantile Batten Disease. Includes disease information and resources.
- NINDS: Batten Disease
- Information about the disease, treatment, and prognosis from the National Institute of Neurological Disorders and Stroke.
- seeAbility
- Charity for visually impaired, blind or partially sighted people with disabilities including learning disabilities and juvenile Battens. Offers supported living, residential, rehabilitation, and day services.
- What Is Batten Disease?
- Information on the disease and its causes.
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