- Ectodermal Dysplasia Mailing List
 - Includes FAQ, manifestations, and types of the inherited disorder.  Ectodermal Dysplasia Society
- Provides information on the disease, as well as research, symptoms, and diagnosis.- HED Foundation
- Serves children with Hypohidrotic Ectodermal Dysplasia and related disorders that affect the body's ability to cool itself. Includes information about protective apparel.
- MedlinePlus: Ectodermal Dysplasia
- Includes illustrations, causes, risk factors, symptoms, treatment, and more about the condition characterized by abnormal development of the skin and associated structures
- National Foundation for Ectodermal Dysplasias (NFED)
- Assists people with Ectodermal Dysplasia to live not only normal life spans, but nearly normal lifestyles.
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