Lupus Support Organisations
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SITE LISTINGS
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  • Alliance for Lupus Research (ALR) open this site in another window - Supports research into the cause, cure, treatment, and prevention of systemic lupus erythematosus and its complications. Includes grant application, research updates, and events calendar.
  • Arthritis South Australia open this site in another window - Provides support, advice, and advocacy services to South Australians affected by arthritis and associated musculo-skeletal conditions such as osteoporosis, gout, lupus, scleroderma, Sjogren's syndrome, Pagets, and fibromyalgia.
  • Buffalo Lupus Project / Toxic Waste Lupus Coalition open this site in another window - Investigating toxic waste sites and sources of pollution in western New York, inventorying pollutants at each site and identifying specific clusters of lupus and other autoimmune diseases such as rheumatoid arthritis, type I diabetes, multiple sclerosis, and thyroid disease.
  • European Lupus Erythematosus Federation (ELEF) open this site in another window - Promote awareness of lupus throughout Europe and the support groups that are available in each member country. Includes list of member organisations and information on ELEF conventions.
  • Lupus Alliance of America (5) - Provides information and services to assists patients to get past having lupus and back to living. Features overview of the disease, links to local affiliates and support groups, and more.
  • Lupus Association of New South Wales open this site in another window - Community-based counselling and advocacy service aiding those living with Systemic Lupus Erythematosus, Sjogren's syndrome, and related connective tissue diseases throughout NSW and ACT.
  • Lupus Australia Foundation open this site in another window - Providing information, support, and advocacy for people with Systemic Lupus Erythematosus and Discoid Lupus. Includes contact information for support groups in Victoria
  • Lupus Australia Queensland open this site in another window - Covers the symptoms, causes, and treatment options for lupus and offers calendar of local events.
  • Lupus Canada@ - National organisation providing information about lupus and support for those affected by it. Includes contact information for provincial and local organisations.
  • Lupus Foundation of America (30) - Working to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure.
  • Lupus Foundation of Colorado open this site in another window - Offers programmes and services to assist people with Lupus and their family and friends in dealing with a challenging and chronic illness.
  • Lupus Foundation of Minnesota open this site in another window - Provides education, support services, and more to those affected by lupus. Includes calendar of events and list of volunteer opportunities.
  • Lupus Foundation of New England open this site in another window - Funding research, coordinating patient services, and sponsoring special programmes to assist people with lupus and their families.
  • Lupus Foundation of Northern California open this site in another window - Provides support and education services to lupus patients, their families, and medical professionals. Includes information about living with the illness, community chat, and links to chapters around California.
  • Lupus Group of Western Australia open this site in another window - Works to provide education and support resources for lupus patients, their families, doctors, and the community.
  • Lupus Mid-Atlantic open this site in another window - Provides educational and psychological support to lupus patients and their families. Formerly the Maryland Lupus Foundation.
  • UK Lupus Patients Understanding & Support open this site in another window - Offers information and support for lupus and other autoimmune, connective tissues diseases such as Hughes Syndrome.
  • Lupus Research Institute open this site in another window - Supports novel research to determine the cause, improve treatment, prevent, and cure systemic lupus erythematosus. Includes grant information, news, and FAQs.
  • Lupus Society of Alberta open this site in another window - Provides education and support on lupus issues and supports research to find a cure.
  • Lupus Trust of New Zealand open this site in another window - Volunteer organisation supporting people with Lupus and related autoimmune diseases. Includes information on membership and meetings plus individuals' stories of living with the disease.
  • UK LUPUS UK@ - National charity supporting people with systemic and discoid lupus. Includes information on living with lupus, links to regional groups, and news.
  • S.L.E. Lupus Foundation, The open this site in another window - Assists patients, their families, and friends in the New York City area in dealing with the anxieties and frustrations that accompany living with lupus.
  • Santa Barbara Lupus & Rheumatic Diseases Club open this site in another window - Features articles, message boards, support information, and more.
  • UK St. Thomas' Lupus Trust Charity open this site in another window - Supports research in the Louise Coote Lupus Unit at St Thomas' Hospital, London. Features resources on lupus for patients and medical professionals, information about fundraising efforts, and more.
 



 
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