Krabbe Disease
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  • Hunter's Hope open this site in another window - Foundation set up by Buffalo Bills quarterback, Jim Kelly, and his wife, Jill, after their son, Hunter, was diagnosed with Krabbe Leukodystrophy. Includes information on the disease and current research.
  • Krabbe's Kids open this site in another window - Information and links for families.
  • NINDS: Krabbe Disease Information Page open this site in another window - Fact sheet on the rare, inherited degenerative disorder of the central and peripheral nervous systems. From the National Institute of Neurological Diseases and Stroke (NINDS).
  • eMedicine: Krabbe Disease open this site in another window - Clinical overview of the disease with sections on differentials, treatment, and follow-up care.
  • MedlinePlus Medical Encyclopedia: Krabbe Disease open this site in another window - Fact sheet on the inherited disorder, also known as globoid cell leukodystrophy, in which the deficiency of an enzyme causes the death of a child's brain cells.
  • Haleys' Hope open this site in another window - One family's experience with Krabbe's disease. Includes information and helpful hints.
  • Wikipedia: Krabbe Disease open this site in another window - User-edited article about Krabbe's disease, a rare degenerative disorder that affects the nervous system.
  • About.com: Krabbe Disease open this site in another window - About the inherited disease, its types, symptoms, diagnosis, and treatment possibilities.
  • Betsy's Story open this site in another window - Story and pictures of Betsy Alyn Taft, the infant who suffered Krabbe disease before succumbing to it.
  • Drugs.com: Krabbe Disease open this site in another window - Medical information about the rare genetic disorder of the nervous system, which is also a type of leukodystrophy.
  • GeneReviews - Krabbe Disease open this site in another window - Disease overview, diagnosis, clinical description, testing, genetic counselling, and related resources. From the National Centre for Biotechnology Information (NCBI) bookshelf.
  • Genetics Home Reference: Krabbe Disease open this site in another window - Offers diseases description, genetic changes, treatment, and online resources about Krabbe disease.
  • Globoid-Cell Leukodystrophy (Krabbe Disease) and Transplant open this site in another window - Patient information about the life threatening globoid-cell leukodystrophy (GLD), the inherited metabolic storage disorder which affects the muscles, vision, and mental abilities. From the National Marrow Donor Programme.
  • MayoClinic: Krabbe Disease (Globoid Cell Leukodystrophy) open this site in another window - Brief overview of the rare, inherited degenerative disorder of the nervous system.
  • MedicineNet: Fighting Krabbe's Disease With Jim Kelly open this site in another window - Transcript of an interview with Jim Kelly, the former Buffalo Bills quarterback, discussing the management of Krabbe's disease which affected his son.
  • Patient UK: Krabbe's Disease open this site in another window - Features aetiology, diagnosis, and management of Krabbe disease, the inherited autosomal recessive condition which is often fatal, affecting the central and peripheral nervous system.
  • UMM: Krabbe Disease open this site in another window - Overview, causes, symptoms, risk factors, and treatment of the rare genetic disorder of the nervous system. From the University of Maryland Medical Centre.
 



 
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